Wednesday, April 2, 2025

EVERYTHING I DON'T KNOW

 

I have a lot to tell and many possible updates. But presently -  and truthfully - I know as little about my current existence as you do.

Everything here is a frustrating puzzle, a wandering maze of uncertainty. I feel to be in a permanently suspended limbo.

The uncertainty is maddening and infuriating.

My insurance finally stopped covering physical therapy at the end of March. I had two choices - - being kicked out of here on my butt, or to be taken into custody with Hospice. I had an endlessly rambling talk with them yesterday, signed a frighteningly large amount of papers.

It was like forfeiting my life to the grim reaper. They don't expect me to be dying, but they sure as hell want to take my life over while I'm still alive.

What about physical therapy? It seems to be suspended....until??

I'm admittedly clueless and confounded. I feel.......disconnected.

I'm still on an enormous amount of meds.

I still have no updates concerning the biopsy of the"non-cyst" on my arm. It was sent to Florida yesterday (????why????).

When the wound care doctor changed bandages on my arm yesterday, it bled so much that it had to be cauterized. Another wound that I have bled enormously, too.

I figured out why.....

It's because they're giving me blood thinners twice a day. I told the head nurse, so she suspended them for now.

The "non-cyst" on my arm is not looking good.....without horrifying you with details, they now have me on a strong antibiotic (lexofloxacin).

I still have to take at least a dozen (or more) meds once or twice a day.

My "normal" existence has long left me, ladies and gentlemen. I am now fully suspended in the Twilight Zone.

At least my pain isn't as intense as it used to be.

Ever since I had that three week bout with the flu (or whatever) my appetite has dwindled and I'm tired all the time.

At least I finally stopped coughing.

I'm still wondering why I was moved into another room. I've heard several versions.

I was told that my first room was in a noisy location, which was true. It was right by the nurse's station and the maintenance room. 

I was also told something about an elderly lady who constantly falls down and would be safer in my previous room.....????.....

what the hell....you figure it out.

I was't told anything about that ancient munchkin in the wheel chair who let the air out of my mattress (read my previous blog post).

I presently exist by finding diversions from my misery - - like writing in this blog. And buying things that I don't need.

This new ring with an orange gemstone that I got from a jeweler in London.....and this four-hundred year old cross that I got from an archaeologist in L.A.

The cross could be over 400 years old. It was carefully preserved and is in remarkably good condition.

I'm presently wearing both.




And I bought a Samsung tablet, which I hopefully can use more often than my phone.

It was delivered yesterday. Samsung never includes things like a USB cable adapter or MicroSD card (or whatever)....so I ordered them seperately.

When it comes to technology, I'm about fifty years behind.

The tablet has an eleven inch screen, which is larger than what I wanted - - but the price was right and I had next day free delivery.

Here's the tablet, still in the box.

I can only imagine your excitement.

Thanks for reading this. I truly appreciate it.

Jon  💙  

Is it April already?


26 comments:

  1. I have no words, but I do care that you can't be helped in a decent way. It's going to get worse for all of us old folks.

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    1. I always thought my life would be calm and peaceful as I grew older. I never expected it to be painful, chaotic, and filled with complications.
      It's a non-stop struggle, Donna.

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  2. While yesterday was April Fools day, Jon, I fear that this post wasn’t joking around and your medical issues are hardly laughable. It’s always amazed me how you have been able to compose your posts on a phone, so the tablet will be a great improvement. Shame on Samsung for not including the cable.

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    1. I initially hated cell phones and hardly ever used them. When I was suddenly forced to be in hospitals and physical therapy, I had no other choice to use a cell phone. It was my only connection to the outside world. Thank God for technology.

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    2. I just got your card today and it gave me some much-needed smiles. Thank you!

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  3. "I figured out why.....

    It's because they're giving me blood thinners twice a day. I told the head nurse, so she suspended them for now"

    Um. I'll just state the obvious here. You told them. That's concerning.

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    1. Yes, it is concerning. Every one else should have figured it out.
      I have to keep on my toes....so to speak....

      Delete
  4. So much confusion, such a difficult time. I'm glad you keep writing, and I hope you like the tablet. I compose all my posts on phone or tablet, so it can be done! I wonder if the old lady who falls and the one who deflated the mattress are the same! Maybe they want her near the nurse's station to keep an eye on her.

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    1. It's admittedly difficult to do everything on a cell phone, but now I'm used to it.
      The falling lady and the mattress deflator could very well be the same person. And she could be more safe near the nurse's station.
      I just hope she is kept away from my room...

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  5. I don't know if it is an option financially for you, but have you considered hiring a patient advocate? Someone that can go through the medical maze with and for you?

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    1. I certainly need a patient advocate, but there's no way I could afford it. I have no alternative but to learn things the hard way and muddle my way through.

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  6. A girlfriend of mine's elderly mother was in a sort of similar situation--wasn't safe for her to physically go home alone, ran out of insurance coverage, ended up being put in hospice when she wasn't dying. She lived there for four or five years. It's our crazy medical insurance system, Jon. You have probably just fallen through one of its many cracks.

    My friend's mother? Truth. She never wanted to go home again. She loved having people at her beck and call at the push of a button. Not what you would choose, as we know. Me, neither! But hopefully they won't kick you out when you can't function enough on your own. You need to be someplace safe and to be taken care of right now...so wherever you are I am glad you are safe. Or as safe as you can be--lol! Having to ask to be off blood thinners when you needed to be cauterized--good lord! You need an advocate! But you will have to continue to be your own advocate for now. You've been doing a pretty dang good job of it, honestly!

    I hope you can get the tablet up and running soon. I am totally amazed at what you have been able to do on just your phone! I'm fine on my laptop but lost on my phone--lol!

    Thanks for letting us know what's happening and how you are doing. Hang in there! :)

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    1. I know many people (like you and I) who have to muddle their through the complete insanity of the medical system and learn things on their own. It's a never-ending process.
      I've always been fiercely independent, never wanting other people interfering in my life. Now I'm bothered and plagued constantly. It's an endless battle and a constant learning process.

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  7. As others have said, how did they miss the blood thinner connection? Is the facility understaffed? With all the problems you are insuring at least there is a small, but bright light. Your pain is lessened. And a way to keep you in the facility was found.

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    1. I don't think they are understaffed, but they are often careless and disconnected. I have to keep on my toes (no pun intended).

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  8. Wow. Being on an anti-coagulant should have been red flagged on your chart. Careless and disconnected, indeed. Injuries/falls are a big concern with people of anti-coagulants. You wonder what else they're missing? I don't mean to poke at the staff. I KNOW how hard it is working in healthcare...but...there are standards of care. I wish you could get patient advocate. Do you have a social worker to work with and have them explore 'advocacy' avenues?
    I'm glad you got a tablet. That should be easier than posting with a phone. I don't even like texting as that keyboard is too damn small.
    I like the ring with the orange gemstone. That's quite different. Is there a history with the ring?
    Stormy weather in NE Ohio this morning. Flood warnings are out. Cold, warm, sunny, storms...in Ohio...that's in ONE DAY!
    Feel better. Sending positive vibes.
    Paranormal John

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    1. I certainly need positive vibes. Things are always rather disconnected around here, so I have to keep a careful watch. Unfortunately, right now I don't have a social worker to rely on. And I don't really trust Hospice. They always act kind of strange.
      This morning I discovered that I might be moved again to another room. I lost my temper, which is unsual. They seem to be evasive.
      I don't know what will happen.
      I really don't like having to use a cell phone, so I thought I'd try a tablet for a change.
      I really like the ring. I never heard of an orange gemstone. This is only orange quartz, but it looks beautiful.
      Thanks, John, and take care.

      Windy weather here and mild temperatures.

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  9. We are battening down the hatches yet again, I'm thinking about installing a tornado shelter, or burrowing underground 😉
    The nursing staff dropped the ball on the anti-coagulants it definitely should have been a red flag.
    It surely sounds like you need the help of a social worker or advocate to guide you through the maze of rules. Insurance is such a necessary evil.
    Praying you get some much needed answers and more physical therapy.
    Jo

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    1. It's extremely windy here today and 75 degrees - - no storms (yet).
      When I lived in the Missouri Ozarks the storms were constant, and I survived numerous tornadoes - - one came only a mile from my house. A toronado shelter is a good idea.
      I definitely don't know what's going on here at physical therapy. Everyone is either clueless or evasive. I'm frustrated....and admittedly frightened.
      I'm just plodding on.....

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  10. Thank you so much for writing. I may not comment, but I do appreciate reading about how you are doing.

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    2. Whether you comment or not, I truly appreciate knowing that you are there and care. It means a lot.

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  11. Like Jean, I'm so glad you're continuing to post. I'm so glad the pain seems to be abating, as is your cough. (Baby steps, Jon.) Speaking as someone who always looks for reason and answers to life's conundrums, I can't imagine you NOT feeling confused, and frightened, too. Still praying!

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    1. I keep hoping for the best.....but it so often turns out the worst. I'm presently going through many difficulties - - more than I reveal in my blog. I'm worn out, Myra. I've been through much more than most people could endure. Right now I'm wondering if I'll ever walk again....or ever see my home. I seem to have lost everything.
      I will keep updating as long as I can. You and the others give me strength. So do prayers.
      I need that.

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