It's very late at night and I should be sleeping - - but I started thinking.
Uh oh, when Jon starts thinking, it could be a dangerous situation.
You are my faithful devotees, who follow this blog and care about me (all three of you.....or could it be four?). 🙂
Anyway, I dislike being mysterious (as in my previous post). You deserve to know what's going on in my dismal existence.
Hence, a revelation. Sort of.
It was either the last day of June or the first of July (my muddled mind can't retain specific dates). I had an appointment with my oncologist in Cookeville, concerning the squamous cell on my upper right arm....which has been bleeding profusely ever since the biopsy in April (!!).
It was an incredibly hot day. Instead of putting me in a wheel chair, they put me in a contraption similar to a wheel chair, but the back and legs could be adjusted. Nobody knew how it works.....
Gospel truth - - it was absolutely the most UNCOMFORTABLE thing I ever suffered in. The pain in my back and spine was excruciating, my legs were completely numb....there was no way to move into any positive position.
The drive to Cookeville takes over an hour. I was placed in the back of the van. The torture "chair" was too large to properly fit.....so I had to face a blank wall, no window. I won't describe the BUMPS on the road along the way.
My sore ass still cringes when I think about it.
Finally in Cookeville Medical Center - - with Nelly, the 80 yr. old nurse who accompanied me.
I was in a very rotten mood. I couldn't sit in an upright position. My head was nearly between my legs.
(don't try to visualize that - - you'll hurt yourself)
We had to wait in the (surprise) crowded waiting room....and I was more embarassed than you could ever imagine.
Finally, finally we were taken to the tiny room to wait for the doctor. An assistant kept asking me questions. I won't go into that.
How old am I? Do I smoke? Am I diabetic?
I'm thinking
Please! Get the Jaws of Life and pry me outta this frickin' chair!!
Finally, finally the doctor came in. Surprise, surprise. It wasn't my doctor (who had an emergency today). It was a young snippy woman, whose icy look could freeze hot tamales.
It's difficult going into details - - I'll cut to the horrifying chase.
She quickly glanced over my medical records.....then announced the verdict. Just like I was on trial for murder.
Her attitude was cold, rude, and shockingly condescending.
She decided that my medical condition had so "deteriorated" that I was essentially beyond help!
She refused to look at the cancer on my arm. She refused to let me have the scheduled cat scan and lab tests. She decided that I was too weak to be treated ( because I was bed ridden due to my back and spinal problems). When she found out I was signed with Hospice, she advised me to go home with them and.....perish!
I was stunned....and I blew up. I demanded to see my regular doctor....and I told her a few things that I don't want to remember.
I also don't want to remember the agonizing hour ride back to Signature Health Care.
For the next week I was psychotically depressed and extremely upset.
Two cats observing a rainbow. My ai. picture has nothing to do with this post....it's just an aesthetic diversion
So - -
After I semi - recovered from the shock, my sense of logic returned.
My present union with Hospice is a sham. When my 90 day insurance coverage ran out on March 30th, my only alternative was to sign with Hospice so I wouldn't be kicked out of the Signature Health Care facility.
Physically, my blood pressure and heart rate are normal. The edema is completely under control.
All of the wounds that I presently have (treated by the wound care doctor) are the result of radiation burns that I got from eight weeks of radiation therapy (in 2023).
My physical weakness is a result of being bedridden for too long.
That cursed "wound" on my arm doesn't bleed as frequently as it used to. The most recent bleeding episode was on July 5th.
I'm supposed to have an appointment with the dermatologist surgeon on Monday. July 14th. Who knows......?? I'm never optimistic.
Anyway, that's my tedious update. I'm hanging in there. My goal is to start walking- - so I can go home.
Thanks for taking time to read this.
Jon ❤️ almost hopeful
I remember Richard Simmons telling bedridden or wheelchair using people to move what they could. Some of the exercises were just raising hands. Do what you can. Anyone can get stronger. They can remove the thing on your arm. Don't give up hope. Um...was the snippy, cold "doctor" using tough love to motivate you? Maybe not. She may be jaded. BUT think of her often and try to piss her off in your mind by getting better...😄 My 2 cents!
ReplyDeleteI don't need any motivation and the doctor had no intention to inspire me. She was a cold, uncaring bitch. She was there to inspect my cancer and provide medical help. She did nothing.
DeleteThink of her often??
I've nearly expunged her from my memory.
I do strenuous leg exercises in bed every day. I'll get out of here one way or another. I'm not the pansy that some might think.
Sorry, but I'm in a hostile mood. 👹
A hostile mood can be a good thing.
DeleteP.S. Sorry if I sound rotten...I'm mad at the whole unforgiving world.
DeleteI don't understand why they keep delaying treatment on the arm-wound, you would think it would be a damn priority !
ReplyDeleteSorry your trip in the torture chair was such a nightmare, I completely concur when it comes to uncomfortable positions if you have back problems
Did you ever sign up to have your mail redirected through USPS website ?
I'm hoping your friend is still able to check on your home for you, determination will eventually get you back to those green hills.
Hugs,
~Jo
I definitely have more questions than answers. Even some of the people from Hostice are wondering why my arm isn't being treated. It's been three months!!! I'll see what the dermatology surgeon says...
DeleteI never signed up to have my mail redirected.
The lady who works here still gets my mail and checks the house, thank God.
Yep. Our healthcare system is f*ed up. I speak from someone who was up close and personal with this train wreck. You know what I did for a living, Jon... I needn't say more.
ReplyDeleteI hope the derm appt. comes quickly and that issue is treated and resolved. Keep up the exercises and get the hell out of Dodge. Wishing you the best. Being royally pissed off can be quite the motivator! Been there, done that!
Paranormal John
I'm know that you've seen a heckuva lot more of the medical circus than I have - - but it's my journey through the Twilight Zone.
DeleteI don't know what to expect from the upcoming derm.appt. I'm admittedly very apprehensive.
I might be escaping Dodge in my wheelchair....at midnight...😸
I'm glad you're angry. It's your superpower. And you need it now.
ReplyDeleteAnger catapults us to new levels, encouraging us to do things we previously shunned. It is indeed a superpower.
DeleteIn the past few years I have experienced private equity healthcare. It's been bad enough for me, I shudder when I think about what they are, or aren't doing to/for you. This treatment is unconscionable. As others have said, sometimes anger is a motivator. Although I think you probably have plenty of things going on to motivate you already.
ReplyDeleteI get depressed and frustrated, but I never give up. It's extremely difficult at times. You're right - - there are many obstacles, but also many things for motivation.
DeleteHonestly John, I'm aghast. That so-called doctor needs her license suspended; at least brought up before an oversight committee (whatever they call it). I'm guessing there's public info online where one can file a formal complaint? There's no telling how much damage she's done to other meek souls. Fight, my friend. Fight!
ReplyDeleteI don't get stunned very easily, but her uncaring attitude really shocked me. My regular oncologist wouldn't have been that way.
DeleteI thought I could rely on them for assistance, but I left feeling absolutely helpless. I suppose we're completely lost if we don't fight.
Getting pissed off is a great motivator!
ReplyDeleteI had to wait for several months to get the cancer off my face. For a while I was told there was no one available here who could even do it! The surgeon who finally took it off was a temp from California. So, sadly--actually waiting for months isn't a total surprise to me. When the surgeon comes on the 14th be insistent that you need it taken care of so you can get home.
Yes--you need to be able to walk. Work on strengthening every day!! If you can walk--even with a walker--you can get home!!
I've noticed in the past few years that it takes seemingly forever to get medical help. It took months for your face cancer to be treated. I cancelled the cataract surgery because of the three month wait - and now it's taken forever to get help with the cancer on my arm.
DeleteIt's nearly impossible to be optimistic....but if we don't continue fighting, all hope is lost.
I always read you but don't usually comment. Please know that we are rooting for you and appreciate it when you write.
ReplyDeleteI really appreciate the visitors to my blog, even if they don't comment (I often read blogs and don't comment). Thank you, Jean, for being here.
DeleteAs one of your faithful readers, Jon, all I could think about after reading this account of the trip and that horrendous so-called doctor was Peter Finch in the film, Network, shouting…”I’m mad as hell and not going to take it anymore!”
ReplyDeleteThat doctor really shocked me. When she refused to see the cancerous wound on my arm, it was unbelievable. It really upset me.
DeleteI remember the movie Network with Peter Finch....and I can certainly identify with his rage.
I don’t usually comment, but I always read your posts. Your words don’t go unnoticed—some of us are quietly listening, and you’re not alone.
DeleteWhat a nice comment! I really appreciate that - - thanks, Jane.
DeleteJon, I’m so sorry!
ReplyDeleteIt makes me very mad how they’ve handled this whole situation and that stupid doctor! If Nancy helped you navigate this, would it help? It’s always nice to have family who can speak up for you, fight for you, against the stupid insurance stuff! If knew that doctor’s name and phone number? I would give her a piece of my mind with colorful words! Sorry for the rant. Jon, you’re in my prayers. I once helped a young lady in Tennessee that had an eating disorder and her insurance would not allow her to go into treatment. I talked to the governor‘s office and senators. I told them about the young lady, that was she was getting the runaround. They provided airfare, and full treatment out of facility in Florida. I’ve never checked back with her. She has a family and children. I wanted the best for her.
Thank you for your kind and insightful comment. Unfortunately, my cousin Nancy is in poor physical shape. She exhausts her abilities by helping people, but I don't want to bother her right now.
DeleteI'm furious about that heartless doctor, but right now I'll probably let the situation go. I don't even remember her name. I strongly suspect that the insurance companies have something to do with this. The medical care that I had for the past two years must have cost an enormous fortune.
Thanks, Gabrielle - I appreciate your concern.