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It's been one helluva week. On Monday my long-awaited appointment with the dermatological surgeon was mysteriously canceled....by whom or why?
On Tuesday, during the weekly visit with the wound care doctor and her assistant, I had an extremely alarming hemorrhage that scared everyone. Despite having an inner fragility, I'm always tough and unflinching on the surface. This time it wasn't easy.
Ever since I had the biopsy on my arm in April, I've had (very) frequent bleeding (squamous cell). Truth to tell, if this keeps up.......potential disaster.
One of the head nurses called the dermatology office and found out there was a "mix up" on my appointment. They had....get this...no record of me being a patient.
They rescheduled another appointment in September (!!!) and will see if I can get something sooner.
Bullcrap. I'll need a transfusion before September. I've lost faith with everybody, and with good reason.
Today's Friday.
Last night - around 2:00 a.m. - I had another bleeding episode. The night nurse wasn't reassuring. I had to hold a towel on my arm for fifteen minutes (I watched the clock) while she looked for bandages. Then she asked me how should she apply the bandages (with Tennessee accent that I could hardly decipher).
The "wound' is on my upper right arm - - very difficult to bandage.
I told her just to reinforce it. If the bandages were removed, I'd be in major trouble.
Then I had to hold the bandages together while she searched for some surgical tape.
Needless to say, I didn't get any sleep. Pleasant dreams aren't on my agenda.
I heard through the proverbial grape vine that I will be transferred to a different room (four times already). Several nurses told me to refuse.
Speaking of nurses, another nurse ordered my poetry books and I promised to sign them when they arrive.
My handwriting is worthless due to my right arm. It hurts and I use it (the arm) carefully.
This is only one of my medical problems. Whatever happened to my carefree days - - my unbridled youth?
They linger tauntly like a faraway dream.
"You can't repeat the past."
Didn't Jay Gatsby say that?
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Elusive Time
my latest AI creations
Jon 💜 sleepless
I'm late in reading your comments in some previous posts - - I always appreciate your input!
I'm here. Reading. Praying.
ReplyDeleteIt only takes a few words that can mean a lot.
DeleteJust wanted to say—you’re not alone. Someone’s out here thinking of you.
ReplyDeleteI truly appreciate knowing I'm not alone. I try to reach out with my writing and convey my inner thoughts. It's comforting to know others care.
DeleteI had a feeling that appointment had never been recorded. Just not even trying. Your nursing staff seem to be trying against the odds.
ReplyDeleteI had to wait several months before the appointment, so it could have been easily overlooked. The nurses are doing their best.
DeleteI think you've had a helluva year! Nobody should have to be treated like you have been!
DeleteThis has been a miserable year. I've been through a lot, but I'm used to it. I force myself to endure - and prayers help.
DeleteYou are resilient, Jon. It seems to me your arm should be treated as an emergency and not "wait for an appointment" thing. I don't know anything about Tennessee or its medical care but what is happening to you does not speak well of either. Add me to those who are thinking of you.
ReplyDeleteI absolutely agree that my arm is an emergency situation. I can't keep waiting for months. Precious time is wasted. At first I thought Tennessee had good medical care, but now I'm wondering....
DeleteJon!
ReplyDeleteI just discovered what I can do with AI! My friend Glenn M. of Cathedral City, CA pointed the way to me. Not only do use AI for ad free information I use AI for make my personal creations (see my "Ronzorro" logo on my blog).
Jon, you have a lot of people out here with positive energy and vibes (I don't pray) pushing whatever it is in the Universe to get you out of rehab and back to your mountain cabin the hills of Tennessee. You're missing all the changes in nature. I hope the vegetation hasn't swallowed up your cabin.. Mother Nature moves fast to reclaim her land and also you have the critters who have probably already moved in.
Think of you often my friend.
Ron
I noticed your Ronzorro logo when I recently visited your blog. You always have cute "Ron" images (*smile*). I'm glad you made it to Lowes without much traffic.
DeleteA woman who works here at Signature Health Care lives in my area. She checks my house and gets my mail. I'd hate to think of how high the weeds must be. You're right - - Mother Nature reclaims her land.
It's bad when you have to instruct and help the nurse bandage your arm. Geez!
ReplyDeleteI pray they don't try to move you to yet another room! What is their problem?
I just had a messed up date for my blood draw ahead of my CT scans Monday...they couldn't do it according to the date they had been given. Had to call the oncologist's office and wait forever listing to music on my cell phone in the waiting room to get their order corrected. Mine was a minor thing compared to the hell you are enduring, but it is the second time they have messed up the order for my bloodwork. Can't get the CT scans if the bloodwork isn't done. Couldn't get there till today as we had no hot water in my apartment building all week and I wanted to wash my hair at least before I went. Leah finally came over and used some dry shampoo stuff on it to try to make me more presentable. When I got home--finally have hot water!! Always something, isn't it?
I never saw that night nurse before, and unfortunately she didn't seem competent. When she wondered how to bandage my arm, I was worried.
DeleteThe medical "industry" is filled with errors and often causes frustration for helpless victims like us. It seems to be endless. It's insane having me wait months for surgery on a cancerous wound that never stops bleeding. That biopsy in April nearly destroyed me.
It's infuriating that they messed up your bloodwork order. Well, I'm glad you have hot water. 😸
So funny! Everybody in the building must be using the hot water because it goes from warm to tepid--lol! Well, everybody wants to run their dishwashers and take showers and run the washing machines. So, I decided to wait until tomorrow. I prefer my water to be really warm for a shower, especially--lol! Honestly, I don't think I've ever gone six days in my entire life. Even when I was god-awful sick from the Keytruda...I think the longest I ever went was 5 days...twice. But I can wait--till it is good and hot and people have slowed down using it up--lol! Hey--if I wake up at 3 am to pee...??? ROFL! :)
DeleteUnbelievable! Is public shaming (via media watchdogs) out of the question? People need to know what's going with 'healthcare' in this Country.
ReplyDeleteI can't speak to the elusive nature of Time, but choose to remember it all and be glad for the good times. Still praying!
There are so many people who have healthcare horror stories. They often keep it to themselves, which is a shame. Media watchdogs are needed.
DeleteOur past needs to be remembered.
It's the foundation of who we are today.