My mood is dismal, depressed, frustrated, anxious, fearful, angry, hopeless and semi-suicidal.
Other than that I'm okay.
You really shouldn't hear these things. I have nothing to offer but complaints and negativity. I don't feel like whitewashing things, or taking you on a bogus journey along the Sunshine Trail.
I left my humble rural home via ambulance on an afternoon in late December. My Christmas lights were still strung up across the living room. There was a gift basket of Christmas fruit. In my kitchen there were still (incredible) pumpkins left over from Halloween. The place was a total mess. I couldn't clean anything. I was in such excruciating pain from my back/spine that I couldn't walk - - or stand.
Why am I boring you with this?
Tomorrow is Memorial Day Weekend. The (unofficial) beginning of summer!!!
Five months have passed. Five precious months are completely wasted. I am so thoroughly disgusted that words (almost) fail me.
I've been through an absolute worthless maze of doctors, nurses, tests, medications. More friggin' medications than I ever thought a human could endure. Drugs are the God Almighty of the medical business. I'm probably reduced to being an addict. At least (some of) my physical pain is gone.
I can no longer have physical therapy, because my insurance co. dumped me when the 90 days were up. So I was forced into the waiting arms of Hospice. They are just waiting for me to die.
Three (3) of their social workers come to visit me every week. All they do is take my vital signs (if I still have any), question me endlessly, and show disdain if I indicate any physical improvement.
I have to walk on proverbial eggshells when talking to them.
I recently read some reports that they're compiling about me. They write down everything I say. They aren't pleased if I show any signs of progress.
This is the Gospel truth.
I'm between a rock and a hard place.
Signature Health Care wants to keep me here bedridden until I croak. Hospice wants to bury me ASAP.
My (secret) plan is to go home and resume Home Health Care again. They have physical therapy available.
Problem is, I don't know if I still have a home. I haven't heard from anyone who (possibly) checked on it.
I don't know anything here in the Land of Limbo.
I saw Crystal, my (former) physical therapist, last week - - but she was in a hurry and couldn't talk. She brought me a big banana split.
A few days ago one of the workers here brought me a milkshake.
What about that cancerous "cyst" (sounds better than a wound) on my arm. Still bleeding. Late the other night, it bled so hard that two nurses had to tend to it.
I still haven't heard from the dermatologist about a surgical appointment. Rumor hazzit, that my surgery might be schedualed in July or August!!! That is a complete outrage. There's no way in hell I can wait that long.
Don't know what will happen.
I had another ocular migraine yesterday
Meanwhile.....
I can move my legs again, now that the edema is under control. So I'm doing lots of leg excercises in bed.
Have a lot more to tell, but what's the use? I'll only bore you.
Just to annoy all the AI haters, I've made a few more images. So.... you don't like my pretty pictures?
I have some that will delightfully disturb you. Think what you like....each picture tells a story......
(did the widowed bride kill her husband??)
The Curious Widowed Bride
Stage Five of Narcissism
The Wayward Priest
The Fortieth Anniversary
The Crow's Secret
(I made two of these)
Jon 🖤 eternally unnerving
P.S.
A special thank you to Jo from TN - - I got your card yesterday. It means a lot to know you're thinking about me.
I'm so glad no physical woes can dampen your artistic spirit! I'd love to learn more about that one you call, "Fortieth Anniversary."
ReplyDeleteI just made that picture on a whim. It"s the couple's anniversary. They're standing on the edge of a cliff. Are they both going to jump? Or will he push her over?
DeletePerhaps they're just enjoying the view.....but I think it's more sinister.
Thanks for the comment, Myra. It seems like I left everyone else speechless. 😄
Many people think artificial intelligence images aren't really art. I continue having lots of fun with it. It's simply a hobby that takes my frenzied mind away from grim reality.
Deletethecontemplativecat here. Yup. You are truly in hospice hell. They would like you to pass into eternity. It is the way they are. But, that doesn't excuse poor quality of care. Can't think of any thing good to say today. Migraines take over. I fell in 1987, hurt my lumber 2 & 3. Now here I am, struggling with the fall's results. My left leg is weak and I have fallen too many times to count. so now I use a cane and sometimes a walker! Dang it. Keep yourself up when it would be far easier to slide into the dump.
ReplyDeleteI can understand what you're going through. Falls can be extremely dangerous.
DeleteI had several bad falls over the years that completely destroyed my spine and back. I struggled with it, but lately it has gotten far worse. I survived cancer and a heart attack two years ago. Now I'm completely losing my ability to walk.....which scares the heck out of me.
I'm hoping you can find someone you trust to go check on your property, maybe the church people who took care of your driveway ?
ReplyDeleteAt some point they will have to offer a plan of action and keep you in the loop about your care and intentions.
I like your A I creations, at least you are still using your creative talent.
Glad you received the card, I hope it put a smile on your face.
Jo
Some of the people who work here at Signature Health Care live way out in the boonies where I live - - but I don't know who they are. I'll have to ask one of the social workers.
DeleteI honestly don't know very much about my care and their intentions, and it's frustrating.
Your card definitely brightened my day. It means a lot to know you care. 🩷
It certainly is an endless cycle that is going nowhere, Jon, and none of us can begin to imagine what you have been going through for so long. The loss of mobility would scare me as well.
ReplyDeleteI'm ready to give up, Dorothy. I no longer have the stamina or willpower to survive. I've been through too much. It's one heckua challenge.
DeleteI'm impressed that despite all, you're doing leg exercises. Despite your despair, I think you're indomitable.
ReplyDeleteI'm surprised that I can do leg exercises. There was a time when I couldn't lift my legs at all. Right now, I have to devise my own physical therapy.
DeleteUntil the arm situation is resolved, I fear you're stuck in that eternal hell of healthcare. I worked in that scenario for my entire career...so...I got stories! I hope you can find someone to check on your property. Certainly, check with social services and what about the sheriff/police in your area doing a home check d/t your circumstances. Any Social Worker worth their salt could find an answer here. I sure hope they speed up the arm surgery. I really enjoy your AI. The Crow's Secret is really cool...and HOT. Keep em coming! Best Wishes to you Jon.
ReplyDeleteParanormal John
I am too frustrated to even think. I have to get this arm surgery over with, find out if my home still exists, and regain my mobility. Then, hopefully I can request being discharged and get home care again.
DeleteI could post a lot more HOT ai images - - but I don't want to alarm anyone. 😁
I have to clean up the house, tidy up, downsize - - - and get ready for some kitties....😺
ReplyDeleteYes, kitties!
ReplyDelete