First of all, I truly dislike turning this blog into a boring, self-serving medical journal - - yet, my health issues are overshadowing everything else in my mundane existence. I feel some obligation to keep documenting my physical and mental progress - - or lack of it.
I'm sure it's often difficult to discern exactly what's going on with me. Is it my back and spine, my useless right leg, the "pressure" sores on my butt, the edema and blog clots? Congestive heart failure? I suppose it's everything combined.....but there's a lot more to this.
Yesterday (Thursday?) was a monumental day. I had the opportunity to see all of my medical records from 2023 when I was desperately ill - - and was able to discuss everything with a group of nurses, doctors, and physical therapists who know me well.
What I learned was not exactly surprising, yet definitely horrifying. I knew that I was very seriously ill in 2023 but never realized the profound effect that it had on everyone concerned - - in Cookeville Medical Center and here at Signature Health Care.
Two major things have come to light. First, all the doctors and staff at Cookeville in 2023 were secretly certain that I would never survive my ordeal with cancer, but thought it was best not to tell me.
Second, when I eventually pulled through the ordeal, everyone was absolutely astonished with how strong I was - - physically and mentally.
I don't take any credit for that. I fully believe that my strength came from a divine source above.
The cancer was extensive, with a malignant tumor right by my main artery, which made an operation impossible. I would bleed to death.
This caused constant major hemorrhages (I wouldn't dare describe what I went through, it's too shocking). I lost so much blood that it caused a heart attack. A cauterization was employed.
In July 2023, as a last resort, I was sent to Centennial Medical Center in Nashville. The doctors there were somber and curt. They had no hope and advized me to go home in the care of Hospice.
Cookeville attempted a final ploy. Seven weeks of chemo and radiation.
Two and a half months in the hospital - - over three months in physical therapy.
When I was discharged from therapy in November, 2023, I wasn't fully cured. I learned that the staff kept checking the obituaries to see if I survived.
My latest cat scans and pet scans showed no trace of cancer.
My strength, courage, and dignity has impressed everyone - - except me. I've done nothing heroic, nothing special. I simply survived.....thus far.
And it wasn't easy.
Jon
One thing is certain - -
The trials and tribulations never end. The battle always remains uphill. Happy endings mostly occur in fairy tales......
First, we all write about our day-to-day lives. This is currently yours and it is important and you should talk about it. Anyone who doesn't want to read what you write may move on. Second, it is something special. You survived against all odds. Pat yourself on the back and eat some ice cream.
ReplyDeleteI sometimes feel boring and mundane, but that's part of life. It's important for me to keep track of my medical issues, because it's often so overwhelming that my exhausted mind forgets.
DeleteThe last time they gave me ice cream it was completely melted. Yuck!
You're amazing and thank you for writing about your life and health and other doings. I wonder if they'll start writing you up in the medical journals. Maybe they already did!
ReplyDeletePerhaps I should appear in "Stranger Than Truth" or "Ripley's Believe it or Not".
DeleteAmazing.....perhaps.
Thanks, Liz.
Cancer and very serious illness are beat through the shear power of the will to live, you have an ironclad constitution :)
ReplyDelete-Rj
"Ironclad"? I think you're right. Will power is the key to survival.
DeleteWhat a privilege you were given to witness and hear of your ordeal from their point of view! I don't know of anyone else who'd be afforded that sort of confidentiality.
ReplyDeleteRealize it or not, I suspect you actually did more than survive. With, of course, blessings from our Higher Authority.
Thank you for this candid post!
I was aware of everything that happened, but hearing it again from different sources was astounding and enlightening. This journey through life can be incredible...
DeleteThanks, Myra.
thecontemplativecat here/ Wow, Jon. Your survival has been valued by medical staff. Checking the Obits is a part of the caring.You are loved.
ReplyDeleteI was amazed that my situation created such an impact in the medical community. When I recently returned here at Signature Health Care everyone remembered me.
DeleteJon, you are a Survivor!! Throughout your life that you share with us, I am awe struck at the mental and physical strength you have! I smile oftentimes with your ability to scathe through harrowing experiences, diagnoses, and home issues. Gabrielle Gengler
ReplyDeleteGabrielle, I've always identified strongly with cats - - so perhaps nine lives get me through harrowing experiences. I often surprise myself.
DeleteI agree with Sandra. We all write about whatever is going on in our lives. This is what is going on in yours. I can relate to that amazement and happiness from doctors that you have survived when they didn't think you had a chance...how it is truly a miracle and you know that deep in your soul, but you can't quite appreciate it fully when you still feel like shit--ROFL! You just have to laugh, right? Talk about mingling joy and sorrow like an emotional cocktail. But focus on the joy, my friend. Allow yourself brief moments of the weary, impatience to be better than you are at the moment...but believe your will gradually get better. And, honestly, even if we didn't...think of the alternative--ROFL! Celebrate as much as you can, Jon! There's got to be a reason we are still here. :) :)
ReplyDeleteRita, your detailed blog helped me immensely to get through my medical ordeals. You've been an inspiration and I'm truly grateful for that. Thank you, wholeheartedly.
DeleteI'm always wanting to hear how you are, because you are, in a way, what seems like close to death; I'm just glad you're still among the livng. Talk about anything you want to; it's your blog.
ReplyDelete