Monday, November 6, 2023

NOVEMBER UPDATE


I hope one post will be sufficient to tell everything - - especially since I'm notoriously verbose.

I had a doctor appointment today, Monday (the 6th) with my oncologist in Cookeville Medical Center (which is about 50 miles away). I left Jamestown (in my wheelchair, with a nurse) at around 11:00am and we didn't get back until after 5:00 (we travel in a small medical truck).

After my appointment at the hospital, the driver had to pick up two other patients who were getting dialysis treatments at a nearby clinic. He took both of them home before taking me (and nurse) back to Jamestown, so it was a long day.

My appointment was rather brief, but the doctor was pleased with my progress. I will have another app. in January, when I'll get more tests. I gained 23 lbs. since I arrived at the rehab facility.

The open wound that keeps having drainage (near my butt) isn't exactly a radiation wound, as I suspected. It's a remnant of where the tumor was. I foolishly forgot to ask if it will ever heal....but the doctor didn't seem to be worried about it. All my other radiation wounds have healed completely.

The drive to and from the clinic was magnificent to me. I (finally) got a glimpse of autumn! Some of the foliage is turning brown, but many trees were still gold, burgandy, and red. Hills, forests, farms, meadows with cattle and horses.

On the ride home there was a spectacular bright red sunset that illuminated the autumn foliage with glorious vivid colors. I wish I had a camera. I think this impromptu encounter with nature helped revive my soul.

Since many people thought I was crazy for chosing to live alone in a rural area - - let me tell you about the two dialysis patients who rode with us.

One is a man in his 50s who is partially blind, has diabetes and kidney disease. He lives entirely alone in a place more remote than mine.

The other man is 94 yrs. old (!!!!) and lives entirely alone on 24 acres. There are bears on his property.......and he has several shotguns.

These two gentlemen are a great inspiration. I will remain on my rural property (hopefully) as long as God permits.

Meanwhile, back in Jamestown at rehab.......

I have passed all my physical therapy evaluations with flying colors. The head therapist said I was spectacular and astounding.

I admittedly still feel weak and unsteady most of the time - - but I push myself as hard as possible. If I don't keep going forward, I'll be lost.

 I also know that part of my physical problems are due to those old spinal injuries that impeded my ability to walk.

I'm able to do things in my room (unaided) like changing sheets on my bed and washing my hair in the sink. I even somehow managed to reach WAY behind my bed to plug in my cell phone charger. These are things I could never do a month ago.

Hey, what about my roommate from hell? I won't go into details but he was hospitalized - - and then sent home permanently in the care of nurses and his family.

As for me

(let's insert a drumroll here)

I am schedualed to be discharged on November 17th.

Next week.

More about this soon.

                          With love, Jon

34 comments:

  1. Well, you are spectacular!! And I'm so glad you got to see some Fall colors. That must be encouraging to see the two old people doing fine solo. Yes, let's hope that you do great. I think just getting home will help your spirits a lot. Remember we don't have your home address!

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    1. Thank you so much for your continuous encouragement. I finally feel (slightly) liberated from my long ordeal. I'm delighted to be going home but also somewhat apprehensive.
      It was really astonishing and encouraging to know that a 94 yr. old lives alone in the wilderness.
      I will not be able to access my mailbox because it's so far from my house. Hopefully I can arrange to get my mail delivered some other way.
      Then I'll reveal my address.

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  2. What wonderful news Jon ! All of your hard work will finally pay off. It sounds like the doctor is happy with your progress, and confident enough to allow you to return to your forest home..
    The trees are showing their brilliance right now, and that you were able to enjoy them on your trip to the doctor, was a plus.
    Thank you for sharing your news, I'm so happy for you, and your days ahead.
    Hugs,
    Jo

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    1. Thank you so much, Jo. This was truly a remarkable day for me in many ways. It lifted my spirits immensely. I still have a long grueling journey ahead but I'm ready to tackle it.
      It was so wonderful to see the autumnal scenery!

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  3. Good news on many levels! I'm so happy you were able to finally get a taste/view of your beloved autumn (mine too). Those two gentlemen on your ride are certainly inspirations. Keep pushing...you're almost there! The finish line is in sight! Will Bosco be joining you any time soon? Say 'hello' to your Halloween clock for me. I love that clock! LOL! Best Wishes and keep us posted.
    Paranormal John

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    1. It truly was a good day for me in many ways. It is almost unbelievable that I haven't been home in way over five months!!
      It will be a chore to clean up my house and adjust to normalcy again. I feel elated but also apprehensive.
      My cat Bosco has been with my cousin for such a long time. I want my place to be clean and comfortable before I let him return. I'll write more about this issue in a future post.
      I'll think of you every time I look at the Halloween clock. And I'll try to scan the Internet and see if I can find any similar clocks.

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    2. I haven't yet found another clock like mine - - but you can try searching Halloween clocks or antique Halloween clocks.

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  4. That's great that you're doing so well and may be able to leave in a couple of weeks. What a relief that must be. 👍

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    1. I've been away from home so long that it's difficult to believe I will actually be able to return. It will feel strange adjusting to a "normal" life again. I only wish it wasn't at the onset of cold weather.
      Thanks for stopping by!

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  5. "On the ride home there was a spectacular bright red sunset that illuminated the autumn foliage with glorious vivid colors."

    What a gift!

    It's encouraging to hear about the man who is able to live in his home at 94. And fighting bears! 😂

    It's also encouraging to hear you are going home. Time heals all wounds.

    God bless you and keep you, Jon.

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    1. I really wish I had a camera with me - the photos would be gorgeous.
      I couldn't believe that man was 94! He was as active and alert as a 30 yr. old. Truly an inspiration.
      I'm sure I'll have more adventures to write about when I get home.

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    2. I look forward to reading them.

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  6. Jon, what a long day the visit to the oncologist turned out to be, but it sounds like a good outing in many ways. You were able to enjoy some fall colors and your two traveling companions sounded amazing!

    Thanks for the updates on your progress and kudos to you for being able to do so much on your own. It was surprising to read that you changed your own bed sheets in the facility.

    Glad to read that you may be able to return to your beloved wilderness within a few weeks. And, hope you will be able to get some help in clearing out any unwanted visitors in your long absence. Your reunion with Bosco is long overdue, perhaps you will decide on a new companion feline in future. Please do continue to keep with the updates, my friend.

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    1. It really was a wonderful day, Dorothy - - I tasted a great sense of freedom being away from rehab. I finally got to see the autumn foliage, and was inspired by the two men who are surviving on their own. The 94 yr. old is incredible.
      My progress is encouraging - but I'll still have a grueling journey when I get home.
      Of course I'll still give updates!

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  7. Of course you are spectacular! I am happy for you on all counts. What great news and what a great job you have done with your recovery.

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    1. Heck, I'm not sure if I'm spectacular *smile* but my struggle and hard work paid off. I never thought I could overcome all the obstacles.
      I plan to keep writing updates when I get home.
      Stay tuned!

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  8. That bus ride sounds like the senior bus (actually a big van) that I used to take to appointments here in town. They were usually transporting several people at the same time to various places--both to and from. You have to schedule three days ahead of time, or preferably more. The excursion was an all-day affair usually with a lot of waiting for the bus or sitting in the bus, but it was door-to-door service and I always brought a book with me. Priceless when you don't have a car!

    How exciting to be so close to going home! When my sister collapsed in the shower (brain tumor) and laid there for three days with the water running she developed a terrible wound on her backside that took months and months to heal, but it finally did. She also survived the brain surgery they didn't think she ever would. If you have a nurse come by to check on your wound, you should do fine. It just might take longer than you ever expected for it to heal, but your body has done amazing things already! ;)

    I do worry about your house and the heat, though. Winter is already here in the north country. Lots of critters may have been looking for a winter home, too. Did the people come and rebuild your steps for you? You will be busy for quite a while getting your house in order. Those guys you met on transport were inspirational! Won't be long now! :)

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  9. Good heavens, Rita, I never knew that about your sister. It must have been an absolutely horrifying ordeal! It's incredible that she survived!!
    My wound undoubtedly won't heal because I'm laying on it in bed. The doctor didnt seem to be too worried. Hopefully it will eventually heal.
    The transportation that they provide here is a small medical truck. They crammed everybody in. The half-blind guy sat up front with the driver.

    I know that my problems won't be over when I get home - there will be a lot of grueling work to do. But I'll keeping the faith and pushing forward.
    BTW - I haven't found out if my steps were fixed yet.

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  10. Color me ecstatic! Both the great doctor's report and your view to Autumn's remaining splendor. Oh, and your longed-for homecoming in time for Thanksgiving. I'm guessing your cousin will be bringing Bosco -- what I'd give to see a video of his AND your reactions. Your memoirs have, no doubt, taken on a whole new chapter!

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    1. Myra, I never dreamed I would come this far. The past five (over five) months have been an absolute nightmare and I truly never thought I'd survive. My health issues were far worse than I ever revealed on my blog and so was my agony.
      The journey isn't over yet, but I feel overwhelmed with appreciation and thankfulness.

      A LOT of work will have to be done around my house. I want things to be in order before Bosco returns. I'll write more about this in future updates.

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  11. BTW Jon, you can request that your mail be delivered to your house due to medical necessity. Contact your post office, they require you to fill out a form request, and a letter from your doctor. Our neighbor has hers delivered to her front porch.
    Hope this is available for you.
    Jo

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    1. I was hoping this could be done! There's no way possible I could get to my mailbox. I will ask my social worker about this. Thanks!

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  12. Jon, I’ve never commented on your blog, but I’ve enjoyed reading it for years!! I was very concerned about your initial health complications! I’m so very happy to hear that things are going well. Please don’t stop blogging! Love reading your take on things.
    Sam

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    1. Hi, Sam - - I'm always delighted to hear from long-time readers who never comment. Thsnk you so much for finally revealing your existence *smile* and please comment again when you feel like it.
      I plan to continue blogging and updating my progress.

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  13. Jon, This is GREAT NEWS! Aren't the autumn colors fabulous? I understand why you live in the mountain woods. I understand completely. As for folks older than you living alone, Billnow has VA home health care. His dietician was here yesterday. She told us that she has two patients OLDER than Bill. One is 100 and the other 99. Both men live alone! So I guess Bill at 95 years old living with me taking care of him isn't such a big deal after all. I find it amazing that so many older people can continue to live alone. My former boss's father lived alone until he was 97 years old. One of his sons lived nearby and would check in on him. Bart, a gay friend of mine lived alone and died at home in his favorite chair at 97 years old. He only had his neighbor look in on him a few times daily. His neighbor found him in his chair. That's the way Bart wanted to go. Of course you have many years to go yet Jon. This health issue you have now is only a speed bump. You have a lot of living to do yet. I look forward to you posting again from your wooded mountain retreat.
    Take care,
    Ron of Retired in Delaware.

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    1. Hi Ron - - I always read your blog even when I don't comment. Bill is getting wonderful care, from you and the health workers. That is so important - rather than putting him in a "home" somewhere.

      I'm really surprised and encouraged at the amount of very elderly people who manage to live alone. The 94 yr. old man who I met yesterday was as active and alert as a 30 yr. old. He was incredible.
      My Uncle George, who was married to my father's sister, lived alone after she died - - and he lived to be 96.

      After over five months, I can hardly believe I'll be going home. I never thought it would happen. It will be a difficult adjustment but I'll keep going forward. And I will keep blogging. Hugs.

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  14. Jon
    My internet has been down for 3 days, just read this.
    I am so very happy with your progress, it's outstanding how you've improved and regained most of what was diminished. Good goin'!
    Will you have some continuing PT or the like?
    Again, happy for your progress and recovery.
    Mike

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    1. Mike, I'm elated about going home but I'm also extremely apprehensive. There are a lot of things I'll have to contend with. It is going to be a dramatic change after over five months being hospitalized and in rehab.
      I will be having home medical and wound care. I'm not sure about everything else because I still have to talk with my social worker.
      Things will also be difficult since it is the onset of cold weather. I will keep updating.

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  15. Oh Jon, I am soo very happy to hear that you WILL finally be going home soon!! Sounds like you are doing great! Way to go!!!

    As for me, I was involved in a bad auto accident three weeks ago on top of everything else that has been going on in my life so I have not had the time to blog for a few weeks. I am trying to get caught up on the blogs I follow.

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    1. Kim, I'm so relieved to hear from you!!! I have been extremely worried about you. How horrible to have an auto accident on top of all your other problems! I hope you weren't injured. I'm sure you don't have time to write now, but keep an update whenever you can - even if it's just a few words. Please take care. I just sent an email. Hugs - Jon

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  16. FIrst how wonderful that you have healed up and gained the strength you need to be able to go home again. I see you say you will have home health come in, I would think you could also get a homemaker who would clean your house, scrub your floors, the bathroom, dust etc. That would be a great help too. There are also programs to get you heat in your home! Please check into that.
    I am also happy that your check up went so well and that you were able to see all the fall foliage and the beautiful sunset.
    Glad you have a peaceful room now as well. That also helps with healing. Just a good happy post. Take care, Wendy

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  17. I am really anxious to go home, but I'm also somewhat apprehensive. Being away for over five months is an incredibly long time.
    The social workers here are very helpful in preparing things before I return. There will be some cleanup before I get home, also food - and I will get continuing health care.
    I will keep everyone informed with more updates.
    Thanks for your comment, Wendy.

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  18. I'm getting my dancing shoes ready for November 17! Congratulations Jon.

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    1. I smiled at that - - I'll try to dance with you, but I might need my walker.
      Thanks, Cheryle

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